Questioning Stats: Colorblindness.

Hello, lovely souls! We hope you are staying warm today! Thank you for stopping by our blog when you didn’t have to! Based on research of DiD, spanning almost 7 years, we have learned one thing. No one can come to any kind of conclusion of what the actual stats of DiD actually are – Which means everyone is wrong, by default. Which kind of is a problem for us, personally for a few different reasons.

The numbers are so shockingly and ridiculously high in some studies (40-/+), they cannot be taken seriously as reference material. People are actually claiming that “DiD is not rare” – We can entertain that idea for a few minutes but we have a serious question to fellow bloggers, researchers and doctors, if that is the case.

If DiD isn’t rare and the numbers of sufferer’s are as high as 40 percent, per capita, why is it that a hugely disproportionate number of Caucasian women (selection bias) seem to be the ones affected by “DiD” the most?

  Nope, something’s not adding up, as per usual.
Which is a big problem for those who have been misdiagnosed.

Stay perfect people because you do it so well!

Author: MikeandKatyBug

50 thoughts on “Questioning Stats: Colorblindness.

  1. Let’s not forget too, many, many Caucasian women claiming publicly that they live with DiD, also have eating disorders by their own admission(s). This is a recurrent theme that we keep seeing.

        1. Right it’s been posited of course that BPD can appear to be DiD(NOS) It can overlap. Yikes. – Quite tricky, wouldn’t you say? E/e. Remember we had “BPD” once? Lol.

          1. “The DSM-IV-TR criteria for DID have been criticized for failing to capture the clinical complexity of DID, lacking usefulness in diagnosing individuals with DID (for instance, by focusing on the two least frequent and most subtle symptoms of DID) producing a high rate of false negatives and an excessive number of DDNOS diagnoses”

          2. Yes, exactly. Let’s not even forget, many in the medical community don’t think DiD actually exists- Which explains a tremendous amount in our particular case. (C/eg)

          3. HAHA How the hell could that be if 40 percent of people per capita live with DiD. How could the basic diagnostic criteria, in that case, fail if it’s so prevalent?

  2. I’ve been following your bafflement over the wildly varying stats, and I remain just as baffled as you. Is DiD extremely hard to diagnose? Or, on the other end, way too easy to MISdiagnose? Are there too many false positives or too many false negatives? (I have a tendency to think in either/or terms — so the answer may lie in the middle.)

    1. Hey Sadie…we have an idea. We will respond in short time. For some reason, your beautiful and thought provoking comment
      got dumped in our spam box…as soon as we respond, we’ll let you know by email..our social system is really screwed up
      at the moment. 🙂

    2. ” Is DiD extremely hard to diagnose? Or, on the other end, way too easy to MISdiagnose?” Sadly both of those extremes are possible because DiD is now on a “Spectrum” which means the disorder is open to interpretation by the diagnosing doctor/clinician.

      ” Are there too many false positives or too many false negatives?” We have spoken to a clinical psychologist about your question and their immediate response was “My answer would be both”.

      ” (I have a tendency to think in either/or terms — so the answer may lie in the middle.)” You are absolutely correct. As reference to how rare true DiD really is, the NHS doesn’t have diagnostic criteria in which to diagnose, which is odd for some that claim that DiD isn’t rare. The above simply tells us, it’s extremely rare.

      The PROBLEM in our eyes is that everyone has multiple personalities. We all, as humans have varying facets of our personalities that we utilize when the time calls for it. That doesn’t qualify someone as living with DiD, no matter how much they want to live with it. Also, anyone can dissociate if you apply enough pressure, which only makes things more murky. Trauma is a very subjective thing, which only compounds the problem of proper diagnosis.

      You are one super smart cookie. Stay perfect; You do it too damned well!

  3. Well I dunno about smart cookie but I like cookies and I think liking cookies is a smart move. ? Thanks for the compliment.

    And for the detailed answer — complete with input from a clinical psych!

    Your reply has me thinking that many things *related to* DiD may indeed be on a spectrum: personality traits for sure, maybe trauma as well? But maybe DiD *itself* shouldn’t be placed on a spectrum. That implies there could be “mild” (or some other descriptor) levels of DiD. But maybe that’s not right?

    Anxiety has levels — mild to severe. Maybe DiD is not spectrumizable. (That should totally be a word.)

    1. MANY, many people that believe they have DiD simply don’t. That’s just the reality of the situation. Whether it’s misdiagnosis, Factitious disorder, someone fishing for unearned sympathy/attention or trying to get Government/State benefits. DiD is both hard to diagnose and impossible to refute; Many of the malingerer’s we have seen will always say the same thing “I cannot remember the trauma”.

      Ask anyone we know (Can #DaBrick jump in?), true DiD is never mild, ever. It’s complicating and terrifying and frightening, many times (But with huge benefits too). We happen to agree with you, true DiD cannot possibly sit on a spectrum and it’s idiotic (Yes we said it) to assume that it could be. If DiD was so prevalent and so recognized, we wouldn’t have gone 4 decades of being misdiagnosed – The NHS would have diagnostic criteria diagnose but they don’t even have basic standards for diagnosis. How insane is that with a disorder that’s so “prevalent” It’s all the same thing.

      As for being smart, we KNOW you’re extremely smart; Keep that thinkin’ shit up. It’s impressive. 🙂 <3 Thank you so much for stopping by when you didn't have to.

      Stay perfect

      PS: Check the menu for a post under "What is DiD" for a post about Malingering - We think you might dig it. Also we sent you an email on "Possessions" just for future reference. Especially if you ever run into a hiding Kayleigh Marie.

      1. I love the time you take to answer questions and provide tons more info. It feels like a true conversation. I’m up to my elbows in kiddies right now so I can’t give the most thoughtful reply, but I will definitely check out that link.

        Also I replied to your Possessions email! I saw your other one come in this morning and will reply asap. ?

        1. Hi Saidie!!!!! Katy Mae says hello. We consider you to be a true friend of ours and since we do, we don’t mind having conversations with you. Thank you for being our friend. Our goal is spread our message of self positivity and to continue to spread true DiD awareness. There is far too much disinformation about the disorder and it truly bothers us, on many, many levels for many reasons.

          Be aware, chick, for whatever reason, your comments are still being caught by our spam filter. Maybe it’s us? We will look for your email – Thank you so much for responding! 😀 We’ll keep our eyes peeled.

          Stay perfect and super smart!

    2. Hi Sadie☺ IMO there are no levels of DiD, a person has it or they don’t. It can be good, bad, ugly, scary and indifferent. There is no easy way to diagnose it nor deal with it. Each day and hour can be vastly different than the next.

      1. Sadie, that’s #TheBrick. She’s Katy Mae’s Godmother. 🙂 She’s known us a very very long, including pre discovery of DiD (Pe-D) when we were at our sickest.

        Thank you #Brick for your input 🙂 We love you and Katy Mae says hang in there. C/eg

        1. Living with true DiD, Sadie is always frightening but like we said, the payoffs and benefits of living with it are tremendous as well. We like to call it a’ “Beautiful nightmare!” Hello again! We missed you!!

          1. Beautiful nightmare, I like that!

            HI!! The weekend became a whirlwind of pancakes and messes and swimming pools and ice cream and “Are you ACTUALLY pooping, child, or just stalling bedtime”? Getting caught up as much as I can now. 🙂

        2. In fact; Think about it like this: Imagine losing control of your mind, your body and your personality while turning into someone else and you’re aware that its happening and there’s nothing you can do about it but hang on for dear life.

          1. Oh yes. Have no doubt about it. There are many terrifying aspects of DiD that you have to live with daily. With the bad, though, comes the absolutely beautiful.

  4. Hi Sadie
    It’s been nearly 7 years and I’m still learning. They’re an absolutely beautiful family. I love them dearly. Patience will be key in learning everyone ?

Leave a Reply

This site uses Akismet to reduce spam. Learn how your comment data is processed.