Mon. Dec 9th, 2019

Our DiD Journey

"People do it everyday; They talk to themselves. They seem themselves as they'd like to be" –Fight Club

Poetry comes in all forms….

4 min read

We quote:

  “The cause of DID is unknown and widely debated, with debate occurring between supporters of different hypotheses: that DID is a reaction to trauma; that DID is produced by inappropriate psychotherapeutic techniques that cause a patient to enact the role of a patient with DID“. Poetry to our ears and eyes and confirmation of too many theories of our Kayleigh Marie.

There are so many questions we actually have when it comes Dissociative Identity Disorder. When you begin to look at the technical aspects of the diagnosis itself, and the numbers involved, things become messy, convoluted and impossible when applied to the real world. It’s so convoluted that the NHS doesn’t even have guidelines as to how to diagnose the disorder. How could that possibly be if so many people live and have been diagnosed with this disorder?

It’s said that 1 to 3 (Which is a huge statistical margin, by the way, for such a small population of people) percent of any population lives with DiD. That’s millions of people that live with a disorder that doesn’t have clinical diagnosis guidelines in some countries! Yes, we are serious. Let’s do some quick math.

1 percent of the population of the United States is 330,000,000 – This is rounded up from 327.2 million for simplicities sake. That’s a total of 3,300,000 people. 3 million people that live with DiD. Upping those numbers to the stated 3 percent, is 9,999,900.

Did you read that correctly? You did. 9 million (Almost 10 million) people who have been abused so horribly their minds fragmented, exist in the world. Think about that. 9 million people. Let’s start applying some no nonsense, real world applications to those figures.

If there are truly, at the least, 3 million people in the United States that live with DiD why are there only, at BEST a handful of terribly vague blogs and stories that discuss DiD? This is a life changing disorder that fundamentally changes the way you live your life in every single aspect. It’s an awe inspiring and terrifying experience to live with, every single day – Why is there such a stunning lack of personal, relatable stories that delve into both the emotional and technical aspects of this disorder? If there are millions of people that live with DiD, there should be at the least, hundreds if not thousands of interconnected stories about this truly amazing and humbling disorder. There aren’t.

When we realized we were living with DiD, we went on a year long search trying to find others that were experiencing what we were. We found nothing that was even close to our relative experience, living with this disorder. There was a stunning lack of relatable experiences and information from others living with DiD. It became so difficult to find others who were experiencing what we were, Kayleigh had to create a language, out of necessity, to accurately convey to us and others what this disorder is really like. It’s not as simple as “My alter did and said this – Today I’m Bob because I have his hat on…”. Many of the stories we encounter are far too impersonal, linear and unrealistic, for being such a highly dynamic and sometimes frightening disorder.

A small number of clinicians are responsible of the majority of DiD diagnosis’s which is one of the reasons why it’s so controversial. If all you possess is a hammer, everything is going to look like a nail, isn’t it – Especially if there is an aspect of financial gain involved. It’s noted, repeatedly, in more than one study, that many cases of DiD diagnosis’s are therapist induced, in error, with a client enacting the role of someone with DiD. That makes perfect and absolute sense given our personal experience with trying to find others that live with true DiD – It’s harder than you would think and it shouldn’t be with millions of sufferer’s. Hypnosis and therapist induced memory retrieval techniques can mimic, too, in may ways, the DiD experience.

Its also noted, in multiple studies, that many reported cases of DiD are simply spurious claims to receive some kind of Government/State benefit(s). It’s one thing to lie about living with DiD (Malingering). It’s another thing to believe that you have DiD because a clueless or financially motivated therapist suggested it. It’s yet another thing to believe you have DiD because you saw it on the big screen but it’s all the same thing, isn’t it?

With all the malingering, enacted roles, media stigmatization, misdiagnosis’s and lack of guidelines to diagnose in the first place, how can the numbers stated be trusted by anyone with an objective eye? They can’t and shouldn’t be.

We are calling bullshit on these given statistics. Complete bullshit. Thank you, Kayleigh Marie.

20 thoughts on “Poetry comes in all forms….

    1. we are listening to understanding right now. i trust my family when they say im someone important. i dont want to be. you and my dad listened to understanding alot. im glad you were there for him. thank you katy mae

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